THE mum of a three-year-old girl from North Yorkshire with an extremely rare congenital disorder is fighting to raise awareness of the condition.

Wednesday, 10 April 2024 14:41

By Haydn Lewis

Sadie Stephenson, 32, lives in Thirsk with husband, Nathan, 32, and children, Florence, three and two-year-old Archer.

She began her career in advertising at The Press in York, before moving into marketing and on Sunday (April 14) she's running her first marathon - the Adidas Manchester Marathon - to raise money for the Williams Syndrome Foundation.

The foundation helps children and adults with Williams Syndrome, a disability and a rare genetic disorder which affects Florence.

At just six weeks old the doctor discovered that Florence had a heart murmur and further investigations discovered she had three different heart conditions.

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