Rupert Mosey was born with spinal muscular atrophy (SMA) in March 2021 - a genetic muscle wasting condition.
ONE hundred people are preparing to take on a 100-mile challenge to raise £100,000 to support a young boy and a charity helping those living with a muscle wasting condition.
Rupert Mosey was born with spinal muscular atrophy (SMA) in March 2021 - a genetic muscle wasting condition. The condition hit the news at the time as there was a £1.8 million drug called Zolgensma introduced onto the NHS which helped prevent the death of children born with the disease - and Rupert was the second child to receive the drug.
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